Showing posts with label asperger's syndrome. Show all posts
Showing posts with label asperger's syndrome. Show all posts

Monday, November 18, 2013

This is autism.

Autism has been historically portrayed as being a scary and detestable thing. Parents have been horrified to learn their children are autistic. Immediately, many begin to mourn their children's future, as though, just because their child has been labeled autistic, they will probably have no future.

An interesting thing has happened in recent years as autistic children have been growing up and as adults have begun to be diagnosed as well as children. We're discovering that having autism isn't half bad. We've actually started to like ourselves.

I am autistic. Although my life has been very difficult, I wouldn't have it any other way. I cannot drive due to related neurological issues. I have no ability to make spatial maps in my head, so I get lost getting to familiar places on a regular basis. Fire alarms and alarms from emergency vehicles send me into a panic attack state that can ruin hours of an afternoon while I attempt to regain balance. I can only handle dealing with one thing at a time and I need to stay on one topic at a time in conversation, or I become easily overwhelmed. My emotional development has been very slow and will never be like others my age. Although it isn't obvious to many people, social situations are usually hard work for me that leave me feeling exhausted later. The chaos of a period of change and transition, like moving to a new home, can keep me in a constant state of being on the verge of emotional meltdown because I lose the physical bearings that orient me. So, I'm not going to say "This is autism. This is easy."

I will say, "This is autism. This is beauty," however. Here is why- Here are some traits and qualities common in autism that I never want to lose: loyalty, conscientiousness, honesty, sincerity, thoroughness. Also, being detail-oriented, being a natural non-conformist (although not by choice) and being comfortable and happy in solitude. I also like the emotional intensity that accompanies a lot of this for me, because I have to rely on using art and poetry to express it.

Organizations like Autism Speaks are still using scare tactics that make parents feel horrible about having autistic children. As a result, parents scurry about trying one quack cure after another, trying to "fix" their child. Autism Speaks also intimidates people into sending them money for a cure. Since autism is "hard-wired," just like intellectual handicaps, the only way to "fix" it is through genetic research. That is almost all the research Autism Speaks does and it will eventually lead only to identifying the genes for autism so that more of us will be aborted. In other words- Eugenics.

Autism Speaks isn't listening to us, although Autism Speaks claims to be our voice. Even though we have our own voice, they want to shout over it. Autism Speaks executives have high six figure salaries and practically spend more money on jet fuel than goes into their research programs. Don't let Autism Speaks scare you. There's no reason to be afraid of us.

Yes, I have to have help. I have home healthcare assistance several hours a week. I also have a self-employment grant that came from Vocational Rehabilitation. Because of having that help, I'm able to accomplish working towards fulfilling my potential, just as other people do. I am capable of so much more than I knew I could do.

I own my own publishing business and I am also president of a non-profit. I belong to a secular branch of a religious order. But, this blog isn't about my accomplishments. This blog is to say that having autism doesn't have to hold us back in life. Autism can even be a reason to succeed in life.

From a Christian point of view, is autism a "cross to bear" really? In some ways and on some days, it feels like it. But, more often these days, I view my autism as a great blessing. From a spiritual perspective, I've learned that being acutely aware of my weakness and relying on God to do what I cannot has helped strengthen me so that I can handle stress far more easily. I think I'm lucky that I have so many reminders that I need Him. But, above all, I'm grateful to be made the way I am.

This is autism. This is worth it.

Friday, July 19, 2013

Great New Media on the Horizon

Well, I'm having a busy week, putting together new inspirational media! 
Here's the progress I've made since my last post-

Borderline and Beyond App
I'm working with a developer. For those familiar, the RAQ and BSI tests are included and they self-score! The entire e-book for Borderline and Beyond is in the app. There is an "emotional crisis" guide, so the user can click on a feeling state and receive quick practical tips from the Borderline and Beyond book about how to cope. The app contains these topics to tap on- Emotional Overwhelm, Panic, Grief, Traumatic Memories, Obsessive Thoughts, Hurt and Sad. And there's more! Well, that hasn't been developed yet, but it is coming and it will be a great surprise!

Insights from Carmel- Pat Tresselle, OCDS
This book is in the editing phase. I have an assistant editor now, who is so outstanding I'm freed up to work on other things, such as graphic design and formatting for this book-

Autism, The Dogs I Love and Me- Christopher and George Dean
This children's picture's book is full of graphic art design and stories from Christopher's life, from birth to middle school. It is a joy to produce. I may provide some "sneak peaks" in further blogs.

And, in other news...
As usual, my books are for sale on Amazon and Barnes and Noble online. There is also a kindle edition on Amazon and my ebook is coming soon to the Apple store. Look for it there!

I'll keep you all updated!
As always, let me know if you'd like to pre-order or be notified via email as books are released.

Tuesday, May 21, 2013

Autism, The Dogs I Love and Me- Coming Soon!

Great News! 

Carmel Heart Media has a new book on the horizon.

Coming soon:  

Autism, the Dogs I Love and Me, a children's book by Christopher Dean (with help from his father, George Dean) 

Christopher tells the inspirational story of how he came to terms with having autism, partly through the help of his furry pals. This should be a book to help introduce even very young children to what autism means and how life can still be very good.

Christopher's father, George, is from my home town of Rome, Georgia. We are both alumni of Shorter College, which is now Shorter University.

Take a close-up look at the cover. There are more than 30 different dog breeds represented!


Christopher Dean with his dad, George Dean

Saturday, March 9, 2013

Mercy and Miracles~ Reflections on Aspirancy

Today was my monthly "Carmelite Day." Each month, I spend the day at Carmel Maria Regina Monastery in Eugene, Oregon. It's a busy day. We have mass, morning and evening prayer, lectio divina and I have three classes. Every month, I have assignments to read and answer questions, but I've completed all the material for my Aspirancy now. The next step will hopefully be entering formation, which is the secular order's equivalent of moving from being a postulant to a novice. It's strange to think that this year hasn't been called "formation," because I'm definitely feeling like I've been being shaped and formed and the Carmelite way of life has had everything to do with it.

I reflected today about how I've grown in confidence this year. I'm feeling braver in the tasks I undertake. I have a fuller sense of what God wants from me in my life and I'm developing what can only be called a lay apostolate. In a year that I've also just been integrating what it means to be Catholic, I've been exploring what kind of Christian, or "new person in God," I really am. I'm nothing like I thought I was. I'm actually getting better at working together with others in groups and I feel like I have a better sense of humor. For an autistic like me, these are pretty amazing things. Just two years ago, I had no goal or purpose and had given up on life entirely. Just last year, I was afraid to be around people much at all. As amazing as this is, I am not amazing at all. The power of God working in me is what's amazing.

Our scripture reading for today was about the pharisee and the tax collector. The pharisee proudly tells everyone what a good and faithful Jew he is. He seems to do everything "right." He dots his I's and crosses his T's in all he does. He gives to charity, he fasts, he keeps the ten commandments. And, he certainly did not need Jesus' help. The tax collector beat his breast and said "O God, have mercy on me, a sinner." Jesus said that the tax collector was "justified," but the pharisee was not.

The tax collector was intensely aware of his need for God and of his absolute dependence on God. When we don't realize our absolute dependence on God for every breath we take and every thought we think, there's no room in our soul for God to enter in. After all, telling God you don't need Him is pretty much shutting the door on Him. It doesn't matter how many good works you do if you give yourself the glory.

You may have wondered why Catholics repeat, "God have mercy," so much. Well, the answer to your question is here. "God have mercy," is the equivalent of, "Help, I desperately need you!" The truth is that we do, desperately need God every minute of our lives. Our need to depend on Him will never go away.

As we go out in the world, we are bombarded with messages of how to "succeed" in careers and to surpass others financially or in the way we dress or look. We're inundated with messages to be the best in all we do and especially to be better than others in doing those things. These messages are so persistent and so strong that if I were not repeating, "Lord have mercy," to myself often, I would lose the realization of how much I need God. To lose that realization is to lose everything.

Humans are just so incredibly knuckle-headed. We don't remember such a basic thing. I know for me, I need constant repetition. My tendency is to be driven toward self-aggrandizement. I need constant reminders that I'm here to serve Him and not myself, and so I am Catholic.

Since I am dependent on God for everything, he deserves the glory in my life. I dearly want to give Him that, but sometimes I also want to steal the spotlight. This has been a wonderful year of growth for me, but it really has been all about God. He's been the center of my life and my constant prayer has been for His direction and help. I feel so grateful. This Easter will be my first anniversary as a Catholic. What a year!

Tuesday, November 20, 2012

Stress and the Compulsive Carmelite


I've been away from this blog for a while because of several changes in my life. The most important was the decline in my father's health. My father, who suffers from Parkinson's Disease, intermittent dementia and heart problems, has been in the hospital all week and is going into a nursing home tomorrow, which will hopefully be temporary. Hopefully, his condition can be rehabilitated back to his previous level. My week has been rife with anxiety over my father's condition and with family problems causing great stress in general. My relationship with my father has always been the most important relationship in my life. I'm a Daddy's girl. I adore him. Even the thought of his suffering at all stabs me in the heart.

Also, a very good thing happened over the past week. I was able to receive my grant funding in order to further my efforts in publishing and also to produce e-books and apps. At first, I was ecstatic, but then the glow dissolved into the realization that I need to follow my business plan carefully and make meeting my goals happen. New world, new business, new frontier, with expectations. I felt a bit intimidated and anxious, although still confident, overall.

Any student who has taken Psychology 101 knows that significant life events, both good and bad, can be equally stressful. Stress has more to do with life changes in general than with our experience of whether we like them or not. And, changes are a bit harder for people on the autism spectrum. I've had to make a lot of changes to my routines, schedules, and conceptualization of things. Through all this time, I've been told I am handling it all really, really well.

Why? Well, it's not because of coping skills. It's not because I'm doing anything new really. Something natural is happening. Yes, really. I'm truly grateful. For about a couple of months before I first became Catholic, I started praying the Liturgy of the Hours two and three times a day. At the time I started, I was depressed and it WAS a coping skill to pray throughout the day. Now, ten months later, it has become a habit. Shortly after becoming Catholic, I began to seek out novel ways to complicate my life. I tried to do the Sacred Heart Novena nine times a day for nine days. That went so well that after 21 days, I gave up trying to do it at all. I started a checklist of all the various prayer practices I wanted to integrate into my day, and frustrate and berate myself daily and weekly by my inability to reach even 50% of my goals.

At long last, I went to my spiritual director, Father Richard. He explained to me that prayer should be “natural” and “organic.” My first thought was about hippies selling chemical free vegetables. The concept of natural prayer did not compute. Why not? Not trusting myself had a lot to do with it. So, I let go of all but two prayer practices, at Father Richard's request. I started to notice an interesting thing: spontaneous, natural prayer began to happen.

Walking downtown in Eugene presents copius opportunities to pray for people who are homeless and mentally ill. I started to notice praying for them was automatic as soon as I saw them. I started noticing myself automatically praying a lot as I walked around downtown. In a doctor's waiting room, I would become aware I was reciting the Divine Mercy chaplet, just because I was thinking of someone and worrying about their well-being. Prayer just bubbles up from my heart, sometimes at the least likely times.

Secular Carmelites commit to “ponder the law of God day and night.” How does a person make that happen? I think you need to really, really want it to happen. My natural goal is today and every day to glorify God in all I do. I am blessed with unquenching desire for Him. So, I'm learning to trust the rhythms of my heart, allowing myself to pray naturally. Humans were created to praise and serve God, so of course, it should be natural.

So, I have relaxed and I have let go a lot more. I find I'm laughing more. I find I'm frazzled less. I'm naturally praying for Daddy and for the rest of my family around the clock. Instead of worrying, my habit is to pray instead. Am I coping well because prayer is a “coping skill” I am using? I don't really think so. I'm coping well because I am an instrument of prayer God is using. Nothing could be more amazing.



Tuesday, November 6, 2012

Growing up: It's Not About What I Want


Sometimes, I feel blocked in my prayer life. I spend a lot of time analyzing why I might be blocked, examining my conscience over and over, looking at my motives and trying to sort out what might be a sin. I've learned now just to take notes. I have a journal with a section for daily musings and a separate section for examination of conscience. I keep them separate so that I have a more focused, clear intention when I do my evening "examination."

Sometimes, I've used columns, weighing ethics of right and wrong, but I'm still focused on sorting it out. It's not like journaling about what a nice lunch I had with a friend. Even everyday notes like that can give me a great sense of patterns and progress in my life, but I write in the "journal" section for expression and the "examination" section for discernment. 

This process is really tough for me. Part of the reason it's tough is my autism. Ambiguity and shades of grey are not very easy for me to wade through. Part of the problem is that like every sinner, the voice of what I want to do is louder than the whisper of what is the right thing to do. There are people who have actually made a religion out of listening to the loud voice of what they want and drowning out their annoying conscience. Thankfully, that didn't work for me too well, but the vestiges of that sort of thinking can trip me up if I'm not careful.

While I used to panic about doing the wrong thing, I've learned to go about this process calmly. One of our Carmelite priests, Father Jan (now in Uganda), told me that God has an interesting way of working in our lives. He only shows us one thing at a time, and it's what's right in front of us. So, when we're wondering what to do, look to the present moment and to what God is saying here and now. That type of thinking has calmed me down when I've felt the frantic need to figure things out. Father Jan is also the one who helped me figure out a system of note taking and analysis, so I could look at it like a scientist and see patterns over time.

Why bother with all this? The old me did examinations of my life to see where I was holding myself  back from getting what I wanted in life, whether that be material wealth, fame, love or luxury. I would try to eliminate traces of guilt, fear and shame in order to pursue my goals with greater success.

The new me says, "Who cares?" God is SO much greater than my petty little desires and concerns. Although God ultimately wants us to experience His peace and joy, for us to come to Him solely to seek consolation is nothing more than using Him and treating Him like an object. My goal is to have a real relationship, really give and take with God. Sorry if it sounds crude, but it's not "do me, do me," anymore. Every time I meditate on the life of Jesus, I'm getting to know Him. I'm not just droning a monologue on and on about myself in prayer. Jesus is God and he is also fully human forever. I know he loves me and all, but even perfect humans get bored!

When I was in RCIA (Rite of Christian Initiation for Adults,) on my way to becoming Catholic, we learned in class that the purpose of Catholicism is to have a mature relationship with Jesus Christ. At first, I was surprised. I had grown up being told that Catholics didn't think for themselves and were childlike in spirituality. I learned that nothing is further from the truth. Father Bryce, one of our parish priests, taught us that it's not that Catholics don't think FOR ourselves; We just don't think BY ourselves. We think WITH theological giants through 2000 years of combined experience and councils.

More importantly, whose spirituality is more mature than that of the saints? In RCIA, I asked, "What does a mature relationship with Christ look like?" Well, we have thousands of examples throughout history of what that looks like. Various, diverse, creative manifestations of God through amazing people show us the way to ultimate meaning and truth.

I wish I could tell you why I do what I do and what I hope to gain by it, but I can't. If I could do that, I might as well find a spiritual charlatan who will know how to sell it to me. God gives us unconditional love, but WE can choose to make it conditional by refusing to cooperate with that love. Part of that love is the expectation that I do not just spend my life "manifesting my desires." Instead, I spend my life learning to discern and manifest HIS.

This link goes to a really neat method. A Carmelite nun gives an outline of how to examine conscience through using the Interior Castle of St. Teresa. Truly cool!

The Awesome Sister Carmen Explains All

The Ignatian Examen is a popular method of exploration of conscience. It's good too. 

Ignatian Examination of Conscience


Tuesday, October 23, 2012

Change of Heart

Welcome to my new blog, Carmel Heart!

Some may remember me as the author of Borderline and Beyond, a self-help book that I revised twice over the past fifteen years. Soon, the book will be published again as the original edition. I'm looking forward to returning to my simple roots, writing what is positive and practical.

Others may know me as the woman who made over seventy videos on YouTube about autism. Yes, I was diagnosed with autism later in life and found a new way to share about coping skills, through video. Yet, when I updated Borderline and Beyond with information about autism, the essence of the book was diluted. In the future, I'll be separating the subjects.

I've spent the past five years or so in reflection. Life wasn't going the way I wanted. I had gained a lot of the material things I wanted, including prestige, and yet my life was empty. New Age teaching that I thought was of solid benefit fell apart when I realized a life “all about me” and “learning to love myself” was empty and devoid of meaning. So, I dismantled pretty much my whole way of doing things, including letting my old website go. I decided I didn't care anymore about living just for me, so I didn't do much of anything at all until I converted to Catholicism and found a whole new way of life with meaning. That meaning is nourished through my study of the Carmelite tradition.

Carmel is a mountain range in northern Israel where the Carmelite tradition began with a sacrifice by Elijah, and continued as a community of hermits on Mount Carmel with the prophet Elias. The Carmelites were founded as a Christian order in the 12th Century.

During a drought and famine, in a world that was lost and worshiping idols, Elijah brought bountiful truth to the heart and rain to the land.

Well, now I'm an aspirant for the Secular Order of Discalced Carmelites. The goal of this blog is not religion, but rather for me to write as much as possible from the spirit and heart of Carmel. But no, I'm not planning to be preachy. I'm not re-doing anything I've done before to make it religious. Religion has changed my heart, from a hardened heart to a more natural heart. But, it has not made me want to push more ideas, just more compassion.

The question I hope to answer through this blog is, “How can we re-infuse our lost, dead culture with vibrancy and life?” Join the discussion. Add your voice and ideas.

“Answer me, Lord, answer me, so that these people will know that you, Lord, are God, and that you are turning their hearts back again.” -Elijah (1 Kings 18:37)